Rachel DiFazio, PhD, RN, PPCNP-BC, FAAN

Pediatric Nurse Practitioner and Nurse Scientist, Orthopedic Center
Assistant Professor of Orthopedic Surgery, Harvard Medical School
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Rachel DiFazio, PhD, RN, PPCNP-BC, FAAN

Rachel DiFazio, PhD, RN, PPCNP-BC, FAAN

Pediatric Nurse Practitioner and Nurse Scientist, Orthopedic Center
Assistant Professor of Orthopedic Surgery, Harvard Medical School

Medical Services

Languages
English
Professional History

Dr. DiFazio received a BSN from Fitchburg State University and an MSN and PhD from Boston College. In addition to her roles as a nurse practitioner and nurse scientist in the Orthopaedic Center at Boston Children’s Hospital, she holds appointments as an Instructor at the Harvard School of Medicine and Fitchburg State University.

Dr. Difazio fully appreciates that for the best clinical outcomes for patients and their families, a nexus of factors including clinical efficacy, cost-effectiveness of care, and more important, the needs of patients and families across the trajectory of health and illness must be considered. These serve as the foundation for her research, clinical practice, and teaching.

Specifically, her clinical expertise and research focus on improving delivery of the complex care required by children with severe, chronic disabilities, including focused attention on the impact of their condition and care needs on their families. Findings from her studies on health-related quality of life, caregiver burden, and non-medical out-of-pocket expenses are being translated into practice. Most recently, her work is laying the foundation for an integrated transition program in the Orthopaedic Center for young adults with cerebral palsy who are transitioning from pediatric to adult care services. These studies, funded through grants and awards from Boston Children’s Hospital and numerous professional organizations and private foundations, have resulted in cross-disciplinary publications designed to bridge gaps in knowledge and practice between nursing and medicine.

Dr. DiFazio’s expertise extends well beyond the borders of New England. For more than two decades, she advocated for the advancement of nursing education and scholarship in Russia. Outcomes of capacity-building activities within Russian nursing include helping to establish the first university level nursing program; coordinating numerous professional conferences and exchanges; and leading a series of joint scholarly projects between Russian and American nurses that advance evidence-based practice. Of specific note was the English language textbook for Russian nurses she co-edited, which was approved by the Russian Ministries of Education and Health as a primary text for university-based nursing programs in Russia and Russian-speaking countries.

Dr. DiFazio is a fellow in the American Academy of Nursing and uses this platform to help advance policies designed to improve family-centered care. She has received numerous awards for her research, advancements in clinical practice, and international advocacy. Dr. DiFazio is committed to helping prepare future generations of nurses and medical residents while championing evidence-based patient care.

Publications

Children and Youth with Special Health Care Needs: Progress Towards More Family-Centered Systems of Care. View Abstract
Comparison of two modeling approaches for the identification of predictors of complications in children with cerebral palsy following spine surgery. View Abstract
Tools used to measure the impact of comorbidities on surgical outcomes in children with complex chronic conditions: A scoping review. View Abstract
Parental Caregiver Expectations and Satisfaction Following Hip Reconstruction and Spinal Fusion in Children With Cerebral Palsy. View Abstract
Parental caregivers' perception of their transition from hospital to home in children with cerebral palsy who have undergone orthopedic surgery. View Abstract
Determining Incidence and Risk Factors of Pressure Injury After Orthopaedic Surgery in Children and Adolescents With Neuromuscular Complex Chronic Conditions. View Abstract
Barriers to Discharge After Hip Reconstruction Surgery in Non-ambulatory Children With Neurological Complex Chronic Conditions. View Abstract
Pneumonia after hip surgery in children with neurological complex chronic conditions. View Abstract
What makes a good reviewer? View Abstract
Standardizing Opioid Prescribing in a Pediatric Hospital: A Quality Improvement Effort. View Abstract
Is There a Relationship Between Youth Bullying and Internet Addiction? An Integrative Review. View Abstract
Retrospective study of patterns of vitamin D testing and status at a single institution paediatric orthopaedics and sports clinics. View Abstract
Health-related quality of life and caregiver burden after hip reconstruction and spinal fusion in children with spastic cerebral palsy. View Abstract
Hospital resource use after hip reconstruction surgery in children with neurological complex chronic conditions. View Abstract
Hip Reconstruction in Nonambulatory Children With Cerebral Palsy: Identifying Risk Factors Associated With Postoperative Complications and Prolonged Length of Stay. View Abstract
Team Approach: The Perioperative Management of Reconstructive Hip Surgery for the Non-Ambulatory Child with Cerebral Palsy and Spastic Hip Disease. View Abstract
Preventing Childhood Addiction and Caring for the Child with Addictive Behaviors: Implications for Clinical Practice, Education, Policy, and Research. View Abstract
Identifying Bullied Youth: Re-engineering the Child-Adolescent Bullying Scale into a Brief Screen. View Abstract
Building and Sustaining a Culture of Clinical Inquiry in a Pediatric Quaternary Hospital. View Abstract
The incidence and outcomes of nurse bullying in the Russian Federation. View Abstract
Item Generation and Content Validity of the Child-Adolescent Bullying Scale. View Abstract
The Child Adolescent Bullying Scale (CABS): Psychometric evaluation of a new measure. View Abstract
Intrathecal Baclofen Therapy Prior to Spinal Fusion for Patients With Gross Motor Function Classification System IV-V Cerebral Palsy. View Abstract
Reducing the Incidence of Cast-related Skin Complications in Children Treated With Cast Immobilization. View Abstract
Impact of Non-medical Out-of-pocket Expenses on Families of Children With Cerebral Palsy Following Orthopaedic Surgery. View Abstract
Noise Reduction to Reduce Patient Anxiety During Cast Removal: Can We Decrease Patient Anxiety With Cast Removal by Wearing Noise Reduction Headphones During Cast Saw Use? View Abstract
Technology-enhanced focus groups as a component of instrument development. View Abstract
Health-Related Quality of Life and Care Giver Burden Following Spinal Fusion in Children With Cerebral Palsy. View Abstract
"I Didn't Even Know You Cared About That Stuff": Youths' Perceptions of Health Care Provider Roles in Addressing Bullying. View Abstract
Pediatric Orthopaedic Providers' Views on Transition From Pediatric to Adult Care. View Abstract
Effect of Hip Reconstructive Surgery on Health-Related Quality of Life of Non-Ambulatory Children with Cerebral Palsy. View Abstract
Postoperative Complications After Hip Surgery in Patients With Cerebral Palsy: A Retrospective Matched Cohort Study. View Abstract
Differences in health-related quality of life and caregiver burden after hip and spine surgery in non-ambulatory children with severe cerebral palsy. View Abstract
Enhancing Care Coordination Through Patient- and Family-Initiated Telephone Encounters: A Quality Improvement Project. View Abstract
Measuring the youth bullying experience: a systematic review of the psychometric properties of available instruments. View Abstract
Opportunities lost and found: experiences of patients with cerebral palsy and their parents transitioning from pediatric to adult healthcare. View Abstract
Youth bullying: a review of the science and call to action. View Abstract
Non-medical out-of-pocket expenses incurred by families during their child's hospitalization. View Abstract
Increasing meaning in measurement: a Rasch analysis of the Child-Adolescent Teasing Scale. View Abstract
Incidence of skin complications and associated charges in children treated with hip spica casts for femur fractures. View Abstract
Nonmedical out-of-pocket expenses: a hidden cost of hospitalization. View Abstract
Congenital scoliosis with associated rib fusions: nursing care of patients following VEPTR insertion. View Abstract
Bullying, harassment, and horizontal violence in the nursing workforce: the state of the science. View Abstract
International education: developing site visit guidelines to enhance understanding. View Abstract
Extremity fractures in children: when is it an emergency? View Abstract
Waterproof casts for immobilization of children's fractures and sprains. View Abstract
Nursing in Russia: A "travelogue". View Abstract
Creating a halo traction wheelchair resource manual: using the EBP approach. View Abstract
Coxa vara with proximal femoral growth arrest in patients who had neonatal extracorporeal membrane oxygenation. View Abstract