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Patient & Family Resources

EGID support organizations

  • GI Kids: Patient outreach and education resource created by NASPGHAN — the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition. GI Kids supports families, teens, and children who live with complex digestive conditions by supplying research, raising awareness, and breaking down complex medical jargon into plain language.
  • American Partnership for Eosinophilic Disorders (APFED): APFED is a non-profit organization founded by a group of mothers of young children living with eosinophil-associated diseases. This resource provides education, research, advocacy, awareness, and support for those with eosinophilic-associated diseases.
  • Campaign Urging Research for Eosinophilic Disease (CURED) Foundation: A foundation dedicated to finding a cure for eosinophilic disease. Along with fundraising efforts, resources are available for families with children of all ages about eosinophilic disease, clinical trials, and diet and nutrition information.
  • Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR): CEGIR is a consortium of researchers dedicated to improving the lives of those who live with eosinophilic disorders through research efforts, clinical expertise, and educational resources.

Family education sheets

  • Common medications for EoE: Provides a summary of the types of medications used to treat EoE, how they’re given, and the benefits of each.
  • Transnasal endoscopy: Frequently asked questions about what a transnasal endoscopy is, who is a candidate to receive one, and more are answered in this resource. 
  • Dupilumb (Dupixent) for EoE: Provides helpful information about using dupilumab to treat EoE. It explains what the medication is, how to use it, and additional use tips.

Watch: What to expect from a transnasal endoscopy