Because lymphatic disorders are so rare, the majority of physicians will never treat a child with one. That’s why our team believes it is so important to learn as much as possible about these conditions, long-term effects and treatment outcomes.
Our team truly believes in the importance and value of learning from every patient.
Started in 2012, our Lymphatic Anomalies Registry includes data from around 700 patients. It organizes in one place medical data from patients who tend to see multiple specialists at different hospitals. We’re turning fragmented information into a comprehensive data collection that may include the keys to future treatments and cures.