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Contact Us

Our SMA program coordinator helps families schedule appointments and treatments across departments, obtain insurance approvals, and manages our monthly multidisciplinary clinic. For more information about our services or to speak with the coordinator please contact us at:

Spinal Muscular Atrophy Program
Boston Children’s Hospital
300 Longwood Ave.
Fegan 11
Boston, MA 02115
Phone: 617-919-6814
Fax: 617-730-4796

How to find our program

The Spinal Muscular Atrophy Program is located on 11th floor of the Fegan Building at Boston Children’s Hospital.

When you enter the hospital through the main entrance, look for the blue signs with pictures of fish and follow them to the Fegan elevators.

You can also use these directions:

  • Enter hospital through main entrance
  • Take a left to Fegan elevators
  • Take the Fegan elevator to the 11th floor

Travel information

International patients

For families who live outside of the United States, please contact Boston Children’s Global Services, which facilitates the medical review of patient records and appointment scheduling and provides assistance with customs and immigration, transportation, and hotel and housing accommodations.