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Patient Resources

Cystic fibrosis (CF) is a progressive, genetic disease that affects the lungs, pancreas, and other organs. People with CF produce thick, sticky mucus that affects their breathing and digestion, as well as other parts of their bodies. CF affects everyone differently and can happen to people of any race and ethnicity.

The following resources can help you learn more about CF and find support.

It is recommended that people with cystic fibrosis (CF) follow certain infection control precautions. CF affects everyone differently, and people with CF are prescribed different types of therapies by their care team. Learn about CF treatments and recommended infection control measures to support the health of people with CF. The fact sheets below were developed by the Cystic Fibrosis Foundation.

People with cystic fibrosis (CF) often have unique nutritional needs that may change throughout their lifespan. Data shows that for people with CF, pulmonary function and nutrition status are related. Learn about nutritional considerations for people with CF. The fact sheets below were developed by the Cystic Fibrosis Foundation

Learn how you can connect with others in the cystic fibrosis community who have been through a similar situation. Supports are available for patients and family members.

Learn about organizations and programs that provide education and assistance for people with cystic fibrosis to promote overall wellness.

Learn about opportunities to connect with others with similar experiences and to advocate for equitable, accessible, and supportive care for the entire cystic fibrosis community.

The Cystic Fibrosis Foundation (CFF) offers several valuable resources and programs to patients and their families. These include access to case managers to answer your questions about things like insurance coverage and financial assistance and a variety of opportunities for peer and community support.

Información, recursos y apoyo para personas de la comunidad de fibrosis quística y sus familias. (Information, resources and support for people of the cystic fibrosis community and their families.)

Genetic therapies — including mRNA therapy, gene therapy, and gene editing — could potentially benefit everyone with CF, regardless of mutation, and one day provide a cure for the disease. Keep reading to learn how these exciting new therapies would work. The handouts below were developed by the Cystic Fibrosis Foundation.

Information and resources for people with cystic fibrosis and their families related to health insurance. Some of the fact sheets below were developed by the Cystic Fibrosis Foundation.

Learn about private foundations that provide financial assistance for people with cystic fibrosis and their families, including out-of-pocket medical expenses and financial hardship.

Information and resources for people with cystic fibrosis and their families related to food insecurity, utilities, employment, and free legal information. The fact sheets below were developed by the Cystic Fibrosis Foundation.

Learn about recommended accommodations for students with cystic fibrosis, types of plans that ensure students receive accommodations, and available scholarships for those who decide to pursue education beyond high school.

People with cystic fibrosis have a unique experience when it comes to sexual and reproductive health. Find resources to help answer your questions about health, puberty, pregnancy, fertility, contraception, becoming a parent, sexually transmitted infections, and more.

People with cystic fibrosis (CF) may be eligible for wishes from wish-granting organizations. Learn about different wish opportunities and eligibility criteria. Various experiences and resources are available for individuals with CF of varying ages.